Kurt and Peter lead active lives like other kids their age. Unlike most kids, however, their muscles are deteriorating. Kurt and Peter have a severe form of limb-girdle muscular dystrophy (called “LGMD2C”).
Children with LGMD2C have damaged genes, which prevent their bodies from producing a protein necessary for healthy muscles. Over time, Kurt and Peter may lose their ability to do things most of us take for granted such as walking. Lifespans can vary widely. We hope that with current research, LGMD2C will become a treatable disease.
Research = Hope
Kurt + Peter Foundation was formed by Kurt and Peter’s family and friends to raise money and direct it into the hands of researchers who have the best shot at developing a treatment or cure for LGMD2C.